Quality of Life Assessment: Key Issues in the 1990sS.R. Walker, Rachel M. Rosser Springer Science & Business Media, 2012 M12 6 - 487 pages It was over five years ago that the Centre for Medicines Research organized a workshop entitled "Quality of Life: Assessment and Application". This workshop brought together a unique group of participants, some of whom had been involved in studies on quality of life for well over a decade, whilst others were meeting the subject for the first time. This blend of experienced researchers and enthusiastic newcomers was a great stimulus to the discus sions which followed individual presentations as well as that resulting from the study groups. In the ensuing publication, a balance was sought between a consideration of the complex principles underlying the assessment of quality of life and the application of such assessments to specific clinical conditions which necessitated this approach. The organization in 1991 of a second workshop entitled "Quality of Life Assessment: Key Issues in the 1990s" resulted in a further consideration of the quality of life philosophy, concepts and key instruments together with an update on assessing quality of life in a number of major disease areas. Of particular importance was an examination of various viewpoints concerned with ethical questions and their implications, and quality oflife from industry, regulatory and health care purchasers' perspectives. As a result of this second workshop, the editors of the original book referred to above decided to produce a second edition with a number of updates and additional chapters. |
From inside the book
Page 19
... example , among patients using this version than among those using the American English version39 . It is important that people in the community to be investigated translate and format questionnaires . Translations consistent with local ...
... example , among patients using this version than among those using the American English version39 . It is important that people in the community to be investigated translate and format questionnaires . Translations consistent with local ...
Page 21
... example , one might wish to assess well - being and disadvantage because of health among a group of persons with rheuma- toid arthritis80 . This disease affects social functioning , which involves aspects of life well beyond the ...
... example , one might wish to assess well - being and disadvantage because of health among a group of persons with rheuma- toid arthritis80 . This disease affects social functioning , which involves aspects of life well beyond the ...
Page 27
... example , advanced congestive heart failure may decrease cerebral blood flow and metabolism , thereby producing confusion and difficulty in judgement or reasoning . Clinicians may observe impaired thought and concentration in many ...
... example , advanced congestive heart failure may decrease cerebral blood flow and metabolism , thereby producing confusion and difficulty in judgement or reasoning . Clinicians may observe impaired thought and concentration in many ...
Page 31
... example , patients with chronic renal failure that requires dialysis may find it difficult to obtain or keep employment . Persons with congenital heart disease or a history of rheumatic fever may find it difficult to get insurance or to ...
... example , patients with chronic renal failure that requires dialysis may find it difficult to obtain or keep employment . Persons with congenital heart disease or a history of rheumatic fever may find it difficult to get insurance or to ...
Page 32
... example , a measure with demonstrated reliability and validity , with comprehensive content , and with a long tradition of application may simply not fit into the practical constraints of resources and investigator willingness to adopt ...
... example , a measure with demonstrated reliability and validity , with comprehensive content , and with a long tradition of application may simply not fit into the practical constraints of resources and investigator willingness to adopt ...
Contents
11 | |
rationale for a single | 65 |
Development testing and use of the Sickness Impact | 95 |
The Nottingham Health Profile | 111 |
an update | 131 |
A health index and output measure | 151 |
A fifteendimensional measure of healthrelated quality | 185 |
The EuroQol quality of life project | 197 |
Measurement of healthrelated quality of life in asthma | 301 |
Measuring quality of life in hypertension | 321 |
Measuring the quality of life of patients with angina | 333 |
Measuring quality of life in psychiatry | 343 |
Measuring the quality of life of patients with skin disease | 355 |
Ethical questions and their implication for QOL studies | 373 |
Industry perspectives on quality of life | 383 |
A regulatory view | 393 |
Indices versus profiles advantages and disadvantages | 209 |
The OnLine Guide to QualityofLife Assessment | 221 |
Measuring the quality of life of patients with cancer | 235 |
Measuring the quality of life of patients with rheumatoid | 269 |
Measuring the quality of life of patients with Parkinsons | 289 |
The cost effectiveness of pharmaceuticals | 401 |
Requirements for health care purchasers | 413 |
The importance of quality of life in policy decisions | 427 |
Appendices | 441 |
Other editions - View all
Quality of Life Assessment: Key Issues in the 1990s S R Walker,Rachel M Rosser No preview available - 1992 |
Quality of Life Assessment: Key Issues in the 1990s S.R. Walker,Rachel M. Rosser No preview available - 2012 |
Common terms and phrases
ACE inhibitors activities airways disease analysis angina antihypertensive application areas aspects Assessment of Quality asthma atenolol auranofin behaviour benefits cancer patients captopril chronic cilazapril clinical trials clinician compared comparison components concepts coronary correlation cost depression dimensions disability distress domains drug dysfunction effects evaluation example factors function scores groups health services health status measures health-related quality hospital hypertension illness impairment important improvement indicators individual instrument interventions interview investigator Kaplan levodopa measure of health measurement of quality medicine methodological methods methyldopa mobility morbidity mortality nifedipine outcome overall pain Parkinson's disease performance physical function placebo population problems propranolol psychiatric psychological psychometric psychosocial QALY questionnaire questions reliability respiratory response rheumatoid arthritis Rosser scale self-administered sensitivity Sickness Impact Profile side-effects SIP score specific standard standard gamble statistical surgery symptoms Table testing therapy treatment validity valuation verapamil weights well-years