Genetic Democracy: Philosophical Perspectives
“Genetic Democracy” involves an in-depth analysis of the ethical, social and philosophical issues related to modern genetic research and gene technology. The aim of the book is to introduce systematic research on the social and ethical impacts of the use and development of genetically modified organisms (GMOs) as well as the acquisition, use and storage of human genetic information (HGI). The book contributes to enhancing public discussion and reaching fair and democratic decision-making practices in GMO and HGI use and development both on local and global level.
There are currently few European texts which address the issues involved in a theoretical and systematical manner. “Genetic Democracy” has been written from the viewpoint of social and political philosophy rather than that of traditional bioethics. There is a clear need for a throughout and authoritative philosophical and ethical analysis of the issues involved in genetic research and gene technology. The book will appeal to philosophers, social scientists, genetics professionals, policy makers, academics, industrial organisations and human rights organisations as well as university students and legal scholars. The book will have a broad appeal across Europe, Asia and America since many states are currently considering policy responses to many of the practices discussed in the books (e.g., human biobanks).
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... apply our morality to new circumstances nor even moral intuitions that extend to the question we face, but we may even lack the very concepts in terms of which the issues before us can be thought through from a moral point of view'.
... and the dynamics between, the four categories of ethical issues. While the chief aim of the Declaration was not to provide guidance in everyday bioethical decisionmaking and opinion formation, but to provide 'a universal framework ...
The term 'genetic democracy' can, thus, be understood as an abbreviation for 'the democratic use of new gene-technologies'. V. Launis, J. Räikkä (eds.), Genetic Democracy, 9–19. 9 C Springer Science+Business Media B.V. 2008 The issues ...
The issues surrounding the prerequisites for genetic democracy are socially central and important, since it has been predicted that gene-technology will play a major role in Western societies in the near future.
In a democracy people have possibilities to participate effectively.17 In other words, in democracies people have opportunities to make their views known and thus influence the decisions on issues belonging to public sphere.
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Ethical Expertise in Democratic Societies
The UNESCO Universal Declaration
Autonomy and Genetic Privacy
The Precautionary Principle and the Risks of Modern AgriBiotechnology
Population Databanks and Democracy in Light of the Icelandic Experience
Vilhjálmur Árnason and Stefán Hjörleifsson
Genetic Resources Genetic Democracy and Genetic Equity
Moral Constraints on Permissible Genetic Design