B. In facing the serious challenges of P.L. 93-641, the foregoing group has had to struggle not only with problems indigenous to their areas, conflicting and confusing Department of Health, Education, and Welfare regulations, performance standards criteria and guidelines, but also a serious and crippling lack of adequate funding. Furthermore, many of these Agencies serve sparsely populated and immense geographic areas, often with rugged terrain, adverse weather and limited transportation networks. Congress has mandated enormous responsibilities for all Health Systems A. A listing of activities mandated by Congress which each Health Systems Agency is required to perform is found in Attachment 1. This list also includes performance standards and expectation levels developed by the Department of Health, Education, and Welfare as a basis for measuring Agency compliance. It is apparent from this list of activities that the responsibilities of all Health Systems Agencies are enormous. Where this affects the small, minimally funded, and rural Agencies to a greater extent is in the capacity to meet these standards with limited staff and resources. Results of a survey recently taken with respect to the needs of these Agencies in meeting the above standards have clearly indicated that, under current funding levels, most of these Agencies do not have more than five professional and two clerical staff. The Bureau of Health Planning and Resources Development (BHPRD) currently requires Agencies to maintain records and activities in seven distinct functional areas: B. Data Management Coordination Public Involvement Most Agencies surveyed estimate that, in order to adequately meet current expectations, a minimum or average of one staff member per function is an Further, many feel that additional staff is absolute prerequisite. necessary to comply with local needs and demands. It should be noted that Congress has established a minimal funding level of $175,000 in P.L. 93-641 to accomplish all of these tasks. Unfortunately, the Department of Health, Education, and Welfare interpretation has, for the most part, concluded that this is the maximum funding level for many of the Agencies previously listed. The group asks that the Federal funding level be at least 70¢ per capita with a minimum of $275,000, including a provision for inflation. Further, the group feels that the Secretary of the Department of Health, Education, and Welfare should be given 5% of the arppropriation made under this Act for discretionary use. The Secretary would then have the ability to meet the needs of those Agencies which have extraordinary travel expenses caused by large geographic areas and/or sparse or widely distributed population; energy, or other growth impacts; multiple jurisdictions such as two state agencies or SHCCs; and other problems. North and The Agencies presenting this testimony extend across the Nation manner, adequate provision must be made for insuring participation, Examples: The Western Colorado Health Systems Agency spent $21,150.00 for The Health Planning Association of Western Kansas (HAWK) spends Involving the public in crucial health planning decisions is, perhaps, III. RURAL PROBLEMS A. Previous Congressional Reports such as The Economic and Social Condition Federal of Rural America in the 1970's (prepared by the U. S. Department of Examples: -per capita outlays under conditions of pronounced population in metropolitan counties than in rural ones; -rural counties account for 66% of all substandard housing units 24% of Federal aid to 26% of Federal headstart and -rural counties account for 50% of all children between the ages of The entire history of Federal support for local regional health planning Although the present health planning legislation provides for total geographical coverage by Health Systems Agencies with a minimum funding level of $175,000 for less populous Agencies, we suggest that health B. planning in rural areas remains underfunded. A large part of the work of the rural Health Systems Agency is in the Plan Implementation/Resources Development function, in addition to being concerned with cost containment issues relating to inappropriate service development. This commitment to resource development should be evident from the correlation between "Critical Health Manpower Shortage Areas" (CHMSA) and "Medical Underserved Areas" (MUA) and the areas covered by rural Health Systems Agencies. Furthermore, the need for making health services more available and accessible in rural areas has been recognized by Congress, as evidenced by item (1) of the National Health Priorities of P.L. 93-641" Sec. 1502. The Congress finds that the following deserve (1) The provision of primary care services for medically Increasing the minimum funding base for rural Health Systems Agencies will Historically, Federal approaches to health problems have been categorical; most programs have focused on individual groups or populations with specific problems or diseases. While we understand there are complex pros and cons concerning categorical programs versus block formula grants or the revenue sharing approach, the dominance of categorical programs places a great burden on Health Systems Agencies, especially minimally funded Agencies with few staff resources. Although P.L. 93-641 was very successful in consolidating the Regional Medical Programs, Comprehensive Health Planning and Experimental Health Service Delivery Systems, there still remains fragmentation of health planning efforts in most Health Service Areas. Planning for implementation of Emergency Medical Service is an example. The insulation of the 26-219 O 78 pt. 2 - 16 IV. Veterans Administration and their own internal planning is another. More recognition and support on the part of all Departments and Programs of the Federal and State governments could go a long way to assist rural health planning agencies in acquiring the critical mass necessary to accomplish their planning and development responsibilities. C. There are great difficulties for rural Health Systems Agencies in developing an adequate data base. There are a number of factors contributing to this problem such as the present legal restrictions on the collecting of primary data in the absence of assistance from other sources. Rural Health Systems Agencies generally are dependent upon data supplied by health care providers, such as small rural hospitals who may not keep records on such items as discharge diagnosis. However, in cases where they do, such data. are often not uniform with other facilities in the area. In addition, Health Systems Agencies are held accountable for cost containment but Federal and State governments are often restricted in disclosing financial information that is routinely provided by health care provider groups. D. Another concern of the rural Health Systems Agencies are the recently proposed and revised Department of Health, Education, and Welfare Guidelines for Health Planning. This group maintains that the need exists for a balanced approach which includes strong health planning, appropriate health service development, and regulation. The group supports active participation in the development of cost containment strategies that accurately reflect the unique needs of their Health Service Area residents. It should be recognized that the Guidelines are useful in establishing debate and focusing concern on necessary cost containment initiatives. It should be remembered that the Guidelines are, in fact, only experimental estimates which serve as guidance not law. RURAL HEALTH PLANNING SUCCESSES A. Despite the problems, limitations, and constraints under which rural Health Systems Agencies must operate, they have experienced some rather significant successes. Below are examples of the positive experiences of |