Quality of Life Assessment: Key Issues in the 1990sIt was over five years ago that the Centre for Medicines Research organized a workshop entitled "Quality of Life: Assessment and Application". This workshop brought together a unique group of participants, some of whom had been involved in studies on quality of life for well over a decade, whilst others were meeting the subject for the first time. This blend of experienced researchers and enthusiastic newcomers was a great stimulus to the discus sions which followed individual presentations as well as that resulting from the study groups. In the ensuing publication, a balance was sought between a consideration of the complex principles underlying the assessment of quality of life and the application of such assessments to specific clinical conditions which necessitated this approach. The organization in 1991 of a second workshop entitled "Quality of Life Assessment: Key Issues in the 1990s" resulted in a further consideration of the quality of life philosophy, concepts and key instruments together with an update on assessing quality of life in a number of major disease areas. Of particular importance was an examination of various viewpoints concerned with ethical questions and their implications, and quality oflife from industry, regulatory and health care purchasers' perspectives. As a result of this second workshop, the editors of the original book referred to above decided to produce a second edition with a number of updates and additional chapters. |
From inside the book
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Page ix
... the balance between the treatments available to deal with the disease involved and the patient's well-being. ... concerned with the patient's point of view, about the quality of his life, Aesculepius with action and treatment.
... the balance between the treatments available to deal with the disease involved and the patient's well-being. ... concerned with the patient's point of view, about the quality of his life, Aesculepius with action and treatment.
Page 11
With individual patients, the health-care provider wishes to assess the lives of individual patients and to evaluate the potential and actual impact of treatments on them. Patients, families, and significant others are concerned about ...
With individual patients, the health-care provider wishes to assess the lives of individual patients and to evaluate the potential and actual impact of treatments on them. Patients, families, and significant others are concerned about ...
Page 12
Health outcomes are used to select treatments, for example, the results of clinical trials assessing the effects of ... Health and quality of life outcomes are used to develop a shared view of the disease and of treatment outcomes with ...
Health outcomes are used to select treatments, for example, the results of clinical trials assessing the effects of ... Health and quality of life outcomes are used to develop a shared view of the disease and of treatment outcomes with ...
Page 19
The health care system and its providers usually do not assume responsibility for these more global human concerns, even though they may well be adversely affected by disease or treatment and influence disease course and treatment ...
The health care system and its providers usually do not assume responsibility for these more global human concerns, even though they may well be adversely affected by disease or treatment and influence disease course and treatment ...
Page 23
ations of disease and treatment outcomes, length of survival has long been a primary endpoint in assessing disease ... However, it is not the only criterion that patients use when deciding about life-threatening treatments that may ...
ations of disease and treatment outcomes, length of survival has long been a primary endpoint in assessing disease ... However, it is not the only criterion that patients use when deciding about life-threatening treatments that may ...
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Contents
11 | |
22 | |
rationale for a single | 65 |
Development testing and use of the Sickness Impact | 95 |
The Nottingham Health Profile | 111 |
an update | 131 |
A health index and output measure | 151 |
life 15D and its applications | 185 |
Measuring the quality of life of patients with Parkinsons | 289 |
Measuring quality of life in hypertension | 321 |
Measuring quality of life in psychiatry | 343 |
R B Joyce | 373 |
Industry perspectives on quality of life | 383 |
A regulatory view | 393 |
The cost effectiveness of pharmaceuticals | 401 |
Requirements for health care purchasers | 413 |
A WHO method for the assessment of healthrelated | 201 |
The OnLine Guide to QualityofLife Assessment | 221 |
Assessing Quality of Life in Major Disease Areas | 235 |
Measuring the quality of life of patients with rheumatoid | 269 |
The importance of quality of life in policy decisions | 427 |
Appendices | 441 |
Other editions - View all
Quality of Life Assessment: Key Issues in the 1990s S R Walker,Rachel M Rosser No preview available - 1992 |
Quality of Life Assessment: Key Issues in the 1990s S.R. Walker,Rachel M. Rosser No preview available - 2012 |
Common terms and phrases
ACE inhibitors activities airways disease analysis angina antihypertensive application areas Assessment of Quality asthma atenolol auranofin behaviour benefits Bergner cancer patients captopril chronic cilazapril clinical trials clinician compared comparison components concepts coronary correlation cost depression dimensions disability distress domains drug dysfunction effects evaluation example factors function scores groups health services health status measures health-related quality hospital hypertension illness impairment important improvement indicators individual instrument interventions interview investigator Kaplan levodopa measure of health measurement of quality medicine methodological methods methyldopa mobility morbidity mortality nifedipine outcome overall pain Parkinson's disease performance physical function population problems propranolol psychiatric psychological psychometric psychosocial QALY questionnaire reliability respiratory response rheumatoid arthritis Rosser self-administered sensitivity Sickness Impact Profile side-effects SIP score specific standard standard gamble statistical surgery symptoms Table tests therapy treatment validity valuation verapamil weights well-being well-years