Quality of Life Assessment: Key Issues in the 1990s

Front Cover
S.R. Walker, Rachel M. Rosser
Springer Science & Business Media, 2012 M12 6 - 487 pages
It was over five years ago that the Centre for Medicines Research organized a workshop entitled "Quality of Life: Assessment and Application". This workshop brought together a unique group of participants, some of whom had been involved in studies on quality of life for well over a decade, whilst others were meeting the subject for the first time. This blend of experienced researchers and enthusiastic newcomers was a great stimulus to the discus sions which followed individual presentations as well as that resulting from the study groups. In the ensuing publication, a balance was sought between a consideration of the complex principles underlying the assessment of quality of life and the application of such assessments to specific clinical conditions which necessitated this approach. The organization in 1991 of a second workshop entitled "Quality of Life Assessment: Key Issues in the 1990s" resulted in a further consideration of the quality of life philosophy, concepts and key instruments together with an update on assessing quality of life in a number of major disease areas. Of particular importance was an examination of various viewpoints concerned with ethical questions and their implications, and quality oflife from industry, regulatory and health care purchasers' perspectives. As a result of this second workshop, the editors of the original book referred to above decided to produce a second edition with a number of updates and additional chapters.

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Contents

Assessing healthrelated quality of life for clinical
11
rationale for a single
65
Development testing and use of the Sickness Impact
95
The Nottingham Health Profile
111
an update
131
A health index and output measure
151
A fifteendimensional measure of healthrelated quality
185
The EuroQol quality of life project
197
Measurement of healthrelated quality of life in asthma
301
Measuring quality of life in hypertension
321
Measuring the quality of life of patients with angina
333
Measuring quality of life in psychiatry
343
Measuring the quality of life of patients with skin disease
355
Ethical questions and their implication for QOL studies
373
Industry perspectives on quality of life
383
A regulatory view
393

Indices versus profiles advantages and disadvantages
209
The OnLine Guide to QualityofLife Assessment
221
Measuring the quality of life of patients with cancer
235
Measuring the quality of life of patients with rheumatoid
269
Measuring the quality of life of patients with Parkinsons
289
The cost effectiveness of pharmaceuticals
401
Requirements for health care purchasers
413
The importance of quality of life in policy decisions
427
Appendices
441
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