Genetic Democracy: Philosophical Perspectives“Genetic Democracy” involves an in-depth analysis of the ethical, social and philosophical issues related to modern genetic research and gene technology. The aim of the book is to introduce systematic research on the social and ethical impacts of the use and development of genetically modified organisms (GMOs) as well as the acquisition, use and storage of human genetic information (HGI). The book contributes to enhancing public discussion and reaching fair and democratic decision-making practices in GMO and HGI use and development both on local and global level. There are currently few European texts which address the issues involved in a theoretical and systematical manner. “Genetic Democracy” has been written from the viewpoint of social and political philosophy rather than that of traditional bioethics. There is a clear need for a throughout and authoritative philosophical and ethical analysis of the issues involved in genetic research and gene technology. The book will appeal to philosophers, social scientists, genetics professionals, policy makers, academics, industrial organisations and human rights organisations as well as university students and legal scholars. The book will have a broad appeal across Europe, Asia and America since many states are currently considering policy responses to many of the practices discussed in the books (e.g., human biobanks). |
From inside the book
First of all, there are issues that may be characterised as demand-for-reason problems. There is a demand-for-reason problem when we consider a certain practice or procedure to be morally permissible (for instance, using genetically ...
These may be called empirical ethical problems. A possible example of this category of issues is the question whether the development and cultivation of genetically modified crops and/or food products should be rejected because of the ...
Issues of this kind are genuine ethical problems in the sense that the moral conflict may remain even when the empirical (scientific) and legal facts are clear and accepted by all parties involved in the disagreement.
... informed consent or with a previously acquired 'open' or 'blind' consent is largely a relevance problem because we do not know what is morally speaking involved in the development and use of such human sample and data registries.
Thus, besides posing the already mentioned demand-for-reason problem, the idea of ethical expertise poses an ... raised and human enhancement techniques are likely to constitute new empirical ethical problems (concerning possible short ...
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Contents
9 | |
Ethical Expertise in Democratic Societies | 21 |
The UNESCO Universal Declaration | 30 |
Autonomy and Genetic Privacy | 43 |
Against Radicalism | 53 |
The Precautionary Principle and the Risks of Modern AgriBiotechnology | 75 |
Population Databanks and Democracy in Light of the Icelandic Experience | 93 |
Vilhjálmur Árnason and Stefán Hjörleifsson | 105 |
Genetic Resources Genetic Democracy and Genetic Equity | 121 |
Moral Constraints on Permissible Genetic Design | 133 |