Genetic Democracy: Philosophical PerspectivesVeikko Launis, Juha Räikkä Springer Science & Business Media, 2007 M12 20 - 148 pages “Genetic Democracy” involves an in-depth analysis of the ethical, social and philosophical issues related to modern genetic research and gene technology. The aim of the book is to introduce systematic research on the social and ethical impacts of the use and development of genetically modified organisms (GMOs) as well as the acquisition, use and storage of human genetic information (HGI). The book contributes to enhancing public discussion and reaching fair and democratic decision-making practices in GMO and HGI use and development both on local and global level. There are currently few European texts which address the issues involved in a theoretical and systematical manner. “Genetic Democracy” has been written from the viewpoint of social and political philosophy rather than that of traditional bioethics. There is a clear need for a throughout and authoritative philosophical and ethical analysis of the issues involved in genetic research and gene technology. The book will appeal to philosophers, social scientists, genetics professionals, policy makers, academics, industrial organisations and human rights organisations as well as university students and legal scholars. The book will have a broad appeal across Europe, Asia and America since many states are currently considering policy responses to many of the practices discussed in the books (e.g., human biobanks). |
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... consent due to illiteracy or unfamiliarity with the concepts of modern medicine and bioethics held by the investigators and the majority of the citizens. On the other hand, it seems equally clear that the officials and investigators ...
... consent or with a previously acquired 'open' or 'blind' consent is largely a relevance problem because we do not know what is morally speaking involved in the development and use of such human sample and data registries. The biobank ...
... consent and law without there being any well-articulated ethical ground for such a prohibition. As soon as such a ground can be articulated, objections to them will be raised and human enhancement techniques are likely to constitute new ...
... consents imply a decrease of citizens' control over what control is in other analogous contexts. A biobank based on broad or ... consent asked.1 Thus, it is justified to say, that in the context of new gene-technologies, the practices of ...
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Contents
9 | |
Ethical Expertise in Democratic Societies | 21 |
The UNESCO Universal Declaration | 30 |
Autonomy and Genetic Privacy | 43 |
Against Radicalism | 53 |
The Precautionary Principle and the Risks of Modern AgriBiotechnology | 75 |
Population Databanks and Democracy in Light of the Icelandic Experience | 93 |
Vilhjálmur Árnason and Stefán Hjörleifsson | 105 |
Genetic Resources Genetic Democracy and Genetic Equity | 121 |
Moral Constraints on Permissible Genetic Design | 133 |