AMPUTEE LEFT ABOVE KNEE 10 2263.20 898.00 3071.93 35.00 8535.00 8500.00 4223.00 2835.CO 2664.54 2539.00 7295.00 4756.00 1474.33 815.00 1304.60 631.00 2977.00 2345.00 2181.89 1535.00 2110.20 287.00 6881.00 6594.00 5803.10 5630.00 4595.78 60.00 16762.co 16702.00 4700.36 3972.00 3676.39 97.00 11356.00 11259.00 8908.39 7276.00 7608.59 305.00 39745.00 39443.00 -1 7055.20 6033.00 COST FOR WORK COMP 72 6794.62 5505.50 COST FOR CCDPA 75 8230.04 6536.00 5810.41 STANDARD MAXIMUM RANGE 224.00 Senator CRANSTON. Has it been your experience that the family of the handicapped individual has been a deterrent in the removal of an individual from what you define as a homebound status? Does the family sometimes add to the problem of the handicapped? Miss SHOVER. Are you asking in some situations if the family is an extra problem in the rehabilitation of homebound persons? Senator CRANSTON. Yes. Miss SHOVER. Certainly. I think that families need a great deal of counseling and interpretation as to what the problem is. I think there are some families who really cannot accept continuously having a handicapped person in their family without a great deal of help. I can speak to this because I have handicapped people in my own family and have been with crippled children's services for more than 20 years. Senator CRANSTON. Do you have an estimate of how many homebound individuals there are at the present time? Miss SHOVER. This we will send to you from our management information services. We do not have it with us. I am not sure this is really known. (The information referred to follows:) ESTIMATE OF HOMEBOUND INDIVIDUALS There are no accurate statistics on the number of persons who are homebound. According to the Federation of the Handicapped which has done extensive research on this problem, it is estimated that there are two million homebound persons living in the United States. The large majority of them are economically impoverished and on welfare. Senator CRANSTON. How much is an individual's homebound status dependent upon a lack of information or an inability to obtain information that he or she may wish or need? Miss SHOVER. I am not sure we could give you specifics on that. We will make an effort to do it. We have instances of cases in our files which would document that there are some cases-and that is one reason we are supporting the National Information Referral. If information is more available to people in this country, I think we would be very much rewarded. It is difficult in this complex maze of services for families to find their way about. Senator CRANSTON. If you could supply us with some examples that would show a lack of information compounding the problem. Miss SHOVER. This will be pulled from the States, and we will be glad to try to do it for you. (The information referred to follows:) EXAMPLES WHERE LACK OF INFORMATION HELPS COMPOUND PROBLEMS One of the findings under the Programatic Research Project undertaken by the Federation of the Handicapped in New York City, indicated that if homebound persons received suitable rehabilitation services, at least 20 to 25% may be expected to cease to be homebound. Efforts have to be made to reach these people and to adapt services so that they will be beneficial. I recall a particularly poignant letter from a young Chicago girl which relates to your question. It stated: DEAR SIR: I am a handicapped girl who has cerebral palsy. I can't walk or talk or use my hands, but I can type on an electric typewriter with a head piece. I can't type too fast. I am going to graduate from Spalding High School this June. I know that your organization will help handicapped persons find jobs. Please help me to find a job. I am interested in becoming a push key operator, but I don't know if I could do it or not. "Thank you very much for your time." Senator CRANSTON. What role should the handicapped person have as a consumer in determination of program policy at the Federal, State, and local levels? Mr. KEMP. What role? I think he should have a distinct role, because that individual is being serviced. Senator CRANSTON. How would you give him that role? Mr. KEMP. I would probably start by realizing his needs, trying to determine exactly what needs must be met to let him live a normal life, to at least try to raise him up to the possibility of self-sufficiency. Senator CRANSTON. Do you feel that the handicapped individuals have an adequate role now? Mr. KEMP. No, sir. Senator CRANSTON. Incidentally, Mr. Kemp, are there other handicapped people on the Board? Mr. KEMP. Yes, there are. Senator CRANSTON. How many? Mr. SHOVER. Four out of 24. Senator CRANSTON. I thank you both very much. You have been very helpful. (The prepared statement and biographical sketch of Mr. Kemp follows:) |